Patient Engagement
KidneyX aims to accelerate breakthroughs to promising new technologies for people with kidney diseases by addressing barriers innovators commonly identify as they develop new products for the prevention, diagnosis, and treatment in kidney care. To do this, we hope to create a better collaborative relationship among patients and innovators.
In each prize competition, innovators are asked that their submission provides sufficient detail and information showing the nature and extent of anticipate benefit(s) to patients, including:
- Demonstrating efforts to incorporate patient feedback into the design
- Addressing one or more opportunity to improve a patient's quality of life
Applicants are encouraged to identify and collaborate with patients in the form that is most appropriate for them. We know that many KidneyX applicants will be entering the kidney space for the first time and will not have direct access to patients. As such, we have developed a list of contacts at reliable partner patient organizations that could help identify patients that would be interested in providing direct feedback to KidneyX applicants.
Kidney patient organizations interested in serving as a resource for KidneyX applicants with patient engagement are encouraged to email KidneyX@asn-online.org.
Partner Patient Organizations and Representatives
(Listed Alphabetically)
Organization | Contact |
---|---|
American Association of Kidney Patients | Diana Clynes, Executive Director |
Erin Khale, Director of Operations | |
Richard Knight, MBA, President | |
Paul Conway, Past President, Chair of Public Policy and Global Affairs | |
American Kidney Fund | Deborah Darcy, Director of Government Affairs |
Michael Ly, Director of Public Policy | |
Home Dialyzors United | Denise Eilers, BSN, RN, Board Member |
Nieltje Gedney, Treasurer | |
Nichole Jefferson, President | |
IgA Nephropathy Foundation | Bonnie Schneider, Founder |
National Kidney Foundation | Andrew Fullerton, Government Affairs Manager |
Oxalosis & Hyperoxaluria Foundation | Kim Hollander, Executive Director |
PKD Foundation | Alexis Denny, Director of Government Affairs |